The Germany based, independent organization P-COC, an initiative in support of fume event victims/ patients, has published the following on their website. (summary – please read full text in German language here).
They announced that the consultation clinic for “Fume Event Affected” which is connected to the Occupational Medicine Uni-clinic in Göttingen/Germany has been closed with immediate effect. This ‘fumes clinic’ has been the port of call for hundreds of help seeking fume event affected crew members and passengers over the past few years; they have been able to determine certain neuro-toxic compounds used in aircraft kerosene and jet-oils, which are found in specialised bio-monitoring analysing of bodily fluids and have been determined as being hazardous to many crew and passengers’ health, who have become exposed to such contaminated cabin air. Some of the health effects after inhalation of these fumes can range from damaged lung tissue, to small fiber neuropathy, from balance disorders to visual problems and many more – go to symptoms.
An official statement about if and when the clinic might be reopened has not yet been given. The closure of the clinic applies for existing patients, new consultation requests and even already confirmed follow-on appointments!
P-COC states, that since they could only speculate about the reason for this they prefer not to comment.
They point out however, that their petition to keep the clinic open, has already generated over 90,000 signatures since January 2017 and has received about 9000 comments, some of which are very moving, from those affected, containing their stories about their ordeals to this respect.
For some months, ‘BG Verkehr’ (ed: employers’ accident liability insurance association) has been carrying out a ‘study’ in the form of (only) human biomonitoring.
For this study, twelve so called ‘D-doctors’ (ed: the D-doctor is the first port of call for workplace related accident victims) near German airports have been provided with the necessary sample material.
P-COC states that they cannot advise for or against any participation in this study. Since there is freedom of choice of doctors in Germany, it is up to each person concerned to visit a ‘D-physician’ of their choice.
On top of anything else that might come to mind, BG Verkehr stated on the outset of this IPA study, that they would no longer take over any costs incurred by patients attending the University of Göttingen for human bio-monitoring, as it is not part of the treatment procedure advocated by the BG. This leaves a huge question mark in this authors mind …
It seems that the blood samples within the context of this IPA study (or ‘evaluation’) will presumably be examined exclusively at the IPA institute, which is a facility of the DGUV (German Social Accident Insurance).
On the other hand there will not be any of the other valuable examinations offered, (previously done by the ‘fumes clinic’ in Göttingen to get the full picture of the poisoning injury), by BG-Verkehr, such as lung function testing, cognitive tests, specific reflex tests, vision tests, balance disorders and so on, which seems a bit odd, since these are tests that determine the damage/ injury done after toxic exposure. Furthermore, even upon request, additional tests as aforementioned, and reportedly even referrals have been refused by some D-doctors.
P-COC states that they believe that an independent quality assurance is thus not adequately given.
Please read full text in German language here.
article by Bearnairdine Beaumont / AerotoxicTeam